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Frequently Asked Questions
Common questions about The Medical City Endocrine Diseases Registry, how it works, and how patient data is protected within our institution.
General
What is The Medical City Endocrine Diseases Registry?
The Medical City Endocrine Diseases Registry is designed to systematically track, monitor, and analyze the clinical data of patients diagnosed with endocrine diseases, diabetes and thyroid disorders. It is an initiative developed specifically for The Medical City to support clinical research and improve patient outcomes.
Who operates the Registry?
The Registry is an initiative developed specifically for The Medical City, located at Ortigas Avenue, Pasig City, Metro Manila, Philippines. It is maintained by the hospital's clinical and technical teams.
What conditions does the Registry cover?
The Registry focuses on a broad range of endocrine diseases, including diabetes, thyroid disorders, and pituitary conditions such as adenomas (PitNETs), acromegaly, Cushing's disease, and other neuroendocrine pathologies.
Is the Registry free to use?
Yes. The Registry is provided as a research and clinical quality improvement tool for authorized physicians at The Medical City. There are no fees for its use within the institution.
For Physicians
Who can register for an account?
Only licensed physicians with a valid PRC (Professional Regulation Commission) license number and affiliation with a participating hospital may register. Accounts are subject to verification and administrative approval.
How do I register for an account?
Click the "Doctor Portal" button on the homepage and follow the sign-up process. You will need to provide your name, email address, PRC license number, and hospital affiliation. Your account will be reviewed and approved by the Registry administrator.
Do I need patient consent before enrolling them?
Yes. Under Republic Act No. 10173 (Data Privacy Act of 2012), you are required to obtain informed consent from each patient before enrolling them in the Registry. The consent must cover the purpose of the Registry, the types of data collected, how the data will be used, and the patient's right to withdraw consent at any time. You are responsible for documenting this consent.
What data do I need to enter for each patient?
The Registry collects demographics (age, sex, region), clinical data (diagnoses, imaging findings, surgical records, pathology results, laboratory values, treatments, and outcomes), and consent documentation. All diagnoses should be coded using ICD-10 and the WHO 2022 PitNET Classification where applicable.
Can I access other physicians' patient data?
No. The Registry uses role-based access controls. Physicians can only access patients enrolled under their own care. Registry administrators have limited, audited access for oversight and quality assurance purposes.
Can I export my data?
Data export capabilities are available through the Dashboard. You may export your own patients' data in standard formats for research purposes, subject to the terms of use and applicable data privacy regulations.
What if I leave my hospital or retire?
Contact the Registry administrator to discuss your account status. Clinical data you have entered will be retained in the Registry in accordance with the data retention policy (minimum 15 years). Your account may be deactivated, but the data remains accessible to authorized administrators for continuity of the registry.
Privacy and Security
Is patient data stored securely?
Yes. All sensitive personal information is encrypted at rest (AES-256) and in transit (TLS 1.3). The Registry uses role-based access controls, comprehensive audit trails, and is hosted on infrastructure with SOC 2 Type II certification. Patient names, contact details, and government-issued IDs are never stored — patients are identified only by system-generated registry IDs.
What laws govern the Registry's data practices?
The Registry complies with Republic Act No. 10173 (Data Privacy Act of 2012), Joint Administrative Order No. 2016-0002 (Health Privacy Code), Republic Act No. 11223 (Universal Health Care Act), and Republic Act No. 10747 (Rare Diseases Act). For full details, see our Compliance page.
Can patients request their data be deleted?
Yes. Under the Data Privacy Act, patients have the right to erasure or blocking of their personal data. Patients may exercise this right through their treating physician or by contacting the Registry's Data Protection Officer. Note that de-identified aggregate data that has already been published cannot be individually removed.
Who can see the statistics?
Authorized personnel at The Medical City can view aggregated, de-identified statistics. All data is aggregated and de-identified — no individual patient can be identified. We apply k-anonymity (k=5), age generalization to 10-year bands, and geographic generalization to region level.
Does the Registry use cookies?
The Registry uses essential cookies for authentication and session management only. We do not use advertising cookies, third-party tracking cookies, or cookies for marketing purposes. The Registry does not serve advertisements.
What happens in a data breach?
In the event of a personal data breach, the Registry will notify the National Privacy Commission (NPC) within 72 hours and notify affected data subjects if the breach is likely to cause serious harm, in accordance with NPC Circular 16-03. Immediate containment and remediation steps will be taken.
Registry Statistics
Can I use the statistics in my research or publication?
Yes. Statistics may be cited in academic publications, policy documents, and educational materials with appropriate attribution to The Medical City. Please use the format: "The Medical City Endocrine Diseases Registry. [Year]. Available at: themedicalregistry.com"
How often are the statistics updated?
Statistics are derived from the live registry database developed specifically for The Medical City and reflect the current state of patient data at our institution. They update as our physicians add or modify records.
Why do some statistics show as suppressed?
To protect patient privacy, any aggregate cell containing fewer than 5 individuals is suppressed. This is especially important in an institutional setting to prevent potential re-identification of patients in small groups.
Still have questions?
If your question isn’t answered here, please contact us:
Email: registry@themedicalcity.com